The Mitchells: This Week's Appointments

Sunday, February 25, 2007

This Week's Appointments

Monday, 2/26: Eye doctor (check up on the glasses and lazy eye)
Tuesday, 2/27: Neurologist (just a follow-up, might discuss EEG from January)
Tuesday: physical therapy
Wednesday: occupational therapy
Friday, 3/2: Developmental Pediatrician (follow-up on development...they will plot where she falls on the chart)

thank you for your prayers this week...and as I travel alone with Ella next weekend...PLEASE say prayers for the flight to go smoothly!!

3 comments:

Debbie said...: Prayers for good appointments and smooth flying -- Extra prayers for that! It was difficult with Thomas and I had Tom with me. Hopefully you will not have to take too much with you.; 10:41 AM
Debbie said...: By the way, the airline we flew on did not have milk. A very important thing to know when your little one wants a baba and there is no milk to put in it!; 10:42 AM
Jodie Keeter said...: You'll be lifted up! Make sure you get baby Ella her wings! Jaiden did great flying and we brought new treats and toys to keep her occupied! Be safe! Love you guys! ~Jods; 11:50 AM

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Ella's Story

Elizabeth "Ella" Hope Mitchell was born on May 10, 2006 at 3:45pm...by 5am the following morning the whole world turned upside down. The doctors came in to inform us that while Ella had been resting in the Newborn Nursery, she began to have irregular breathing and seizures. It was touch and go for the next 3 days. We were told several times that she probably would not make it alive through the ordeal. She had contracted Group Beta Strep which had resulted in meningitis. Due to the seizures and the infection we had no idea what the long-term effects would be. After Ella spent a long and trying month in the NICU we came home to see where the effects of her illness had left us all.

A few months later, almost a year, we had an official long-term diagnosis...Ella has Cerebral Palsy. She is a happy and loving child. She struggles with physical delays, cognitive delays and all sorts of things that have come and go.

2-eye surgeries to correct lazy eye
3-EEG's to check for siezures
5-MRI/MRV/MRA to check actual brain damage
3-CT scans for brain stuff
1-G-button/feeding tube surgically put in (and then Ella removed herself)
10 (approx)-Swallow Studies
1-Scoliosis Study
2-Kidney Reflux tests
2-Upper GI tests
1-24 hr reflux test
8-hearing tests
countless UTI tests
seemingly a million developmental tests
a hand splint
bath chair
adaptive stroller/wheelchair
stander
gait trainer
AFO's

ha, not to mention all of the therapist...currently: OT 2X/week, PT 3X/week (2 land, 1 horse), ST 3X/week (2 oral motor, 1 speech), develomental 1X/week, vision 2x/month, and we are about to start ACCDAT camp.

As of 4/8/2009.