Some other things about my 2nd born. He's huge. I don't mean fat and chunky, I mean just big. He's 39" tall (1/2 inch taller than Ella) and weighs 34.8 lbs on my scale before breakfast, without clothes...Ella weighs between 31-32 lbs! He also wears 3T clothing (same as E) and has a size 10 shoes (granted, Ella has tiny feet in her 5's or 6's). He's wild, and gets in trouble at school for being rough (he's bigger and older than every other kid in class so that's part of the problem). He loves to climb, slide, run, and pretty much be a boy. He has very few fears...loud noises (think lawn mower or hairdryer) and houseflies (I know, we are trying to work on this one). He eats just about everything, especially if he's in the car or locked into a chair...give him any room and he'd rather be moving. He loves TV and movies, but is just as happy playing at the park, fast food playground or the backyard. He loves "chichen and fries" because that's what he calls Chick-fil-A (guess we eat there too much) and will eat a hot dog for every meal, no bun and plenty of ketchup and mustard. He also LOVES fruit and is getting better at veggies. He loves to play with a train set that Joe's dad has and can actually sit for an hour and play quietly...rarely does anything hold his attention long enough. He also loves to dance...although he MIGHT have gotten his moves from his father. He loves to talk on the phone, although he limits what he says and points a lot, I always feel bad for whomever he's "speaking" to. He can identify pretty much anyone in a picture and remembers a lot of things that we tell him, unless it has to do with behavior. He talks a LOT and says most words pretty well. He drops the first letter of a lot of things, but maybe it's just because I understand him that I think everyone else should be able to as well. He loves to wrestle, thanks to his cousin Abe, but is realizing that he can't attack everyone...Ella doesn't quite fight back so he's be restricted on tackling her. He does LOVE to hug and kiss her and is really good about telling her "sorry" if he's too rough with her (which he often is and she could care less about it). He loves to play with daddy and loves mommy pretty much most of the time. He's a delight and very soon will be a great big brother, or at list this little kid will have to develop some thick skin and a hard head.
Wednesday, May 12, 2010
Tuesday, May 11, 2010
Today, May 11, 2010 my daughter had her 4-year-well-baby appointment with our beloved Dr. Nale. Ella was pronounced healthy...isn't that just the gracious work of God?! I mean, no, she isn't "healed" but she's healthy. My baby girl who they thought would die 4-years-ago is healthy today. She's happy. The happiest 4-year-old ever. The girl got four shots today and didn't shed a tear...I think she should get a prize for being so brave. She does have to have a bone density test, but that's just to be on the safe side. Her scoliosis scan from yesterday came back clear. She's a little on the light side in weight, but you wouldn't know it if you tried to carry her...so I'm leaving that one alone. She has increased her head percentile which means that her brain might actually be growing...GREAT news!
She's healthy and she happy and she is a blessing.
Monday, May 10, 2010
When watching Ella sleep tonight I wondered...when she dreams, does she dream that she is mobile and talking and "typical"? I do sometimes, in my dreams, realize that she's a typical child in my subconscious, just wondered if it's the same for her. I hope that in her dreams tonight she is chasing butterflies and telling her friends secrets and dancing in the sunshine, and I hope she does all of those things in my dreams tonight too.
I've been asked if I'm ready for the baby to arrive (his name in Jonathan Thomas) and my answer has been very quickly "no" this time around. Not because it's going to be more difficult with three, even though I know it will, but because for now he's safe. He's tucked away somewhere that is designed perfectly for him. I just want him to stay there until he's done cooking and we get to welcome him into our lives.
Four years ago right now we were holding Ella, perfectly healthy and our lives were so simple and easy...4 years from tomorrow morning is when I realized how much prayer I needed in my life on a daily basis.
Thursday, May 06, 2010
Tuesday, May 04, 2010
Ella had an IEP today for her PPCD school education.
IEP=Individualized Education Plan: A detailed description of the educational goals, assessment methods, behavioral management plan, and educational performance of a student requiring special education services.
PPCD=Preschool Program for Children with Disabilities
Here are some of the goals that Ella has "mastered" which means that she performs them 70% of the time during observation:
- Identify an object from a choice of two by looking or reaching with visual, verbal and physical cues. (she picks what she wants between two objects by looking at the one that she wants)
- Follow simple 1-step classroom directions with visual, verbal and physical cues. Example:
"sit up", "come here", "put in", etc.
- Identify 1 target word or object of unit vocabulary by reaching or looking during classroom activities with visual, verbal and physical cues. (they work on different things during the day and Ella answers the questions by looking at her answer either on a board, button, or the actual object)
- Demonstrate purposeful reach to touch a switch to activate a recording or toy, with visual, verbal and physical cues (she can reach to push a button that will activate a toy)
- Shake head "no" or nod head "yes" appropriately to answer a yes/no question with visual, verbal and physical cues (she does "yes" VERY well and we are working on "no"...hard to find things she doesn't like)
- Vocalize to obtain another persons attention during classroom activities, with verbal prompts (she will start talking if someone focuses their attention on someone other than her!)
- Imitate target Consonant + Vowel syllables, with visual, verbal and physical cues (getting her to say one combo "ma" and then another combo "ba" right after each other and switching it up)
- Wave "hi" and "bye" in response to a greeting from a familiar adult, with visual and verbal cues (she says "hi" and will sometimes waves, but we are working on "bye" and consistency)
- Imitate 1 word following a model during classroom activities, with visual and verbal prompts ("Ella"...she working on saying her name when they say it)
- Track presented objects horizontally and vertically with as little head movement as possible (she can do this better when in her chair than sitting alone, she tends to move her head to help with her vision)
- Demonstrate shift of gaze when presented with two objects (to look at each object as they are identified correctly and then fixating on one that she wants)
- Visually attend and fixate on a novel object (like looking at a book while you are reading it to her, she tends to look at the reader)
- Regard familiar face when voice does not compete (just to look at someone familiar even if they aren't talking..."where is mommy" and then finding me without me saying anything)
- Place objects out of reach so that movement toward them objects is attained (works best with her sippy cup because she LOVES it)
- maintain sitting posture in good alignment with feet on floor or footrest in adapted classroom chair with hip prompt only for 15 minute activity (they are working on taking out as much as possible in her chair and making her work more while sitting...they also have her sitting on a bench during story time (video to come)
- develop reach, grasp, and release of toys w/ Left hand w/ verbal prompts (she grasps pretty well, she doesn't like to let go)
- Activate a button or pop-up toy independently with either hand (always better with her left)
- Voluntarily release objects into a container w/ minimal assistance in supported seating position (getting her to put a block into a bin while sitting on a bench with very little support...hard to multi-task with gross and fine motor skills)
We also talked about a lot of her goals for next year, but I'll give you those when I get the official report. It was so great to see that she's made progress and her them talk about her. It's amazing how little these steps seem in a typical child's development, but how important they are in Ella's progress. It will be so fun to compare this in a year from now.