We had the esophagus scope this morning that showed there were no problems with the esophagus itself. There is a problem in that the closer at the bottom of the esophagus, which leads to the stomach, does not close all the way...which makes reflux more common. They were please with the scope, but seemed a little concerned about the sphincter not closing all the way. We have the pH probe in right now and I can hear Joe from the other room gently saying "Ella, we don't play with that string" so I'm guessing it's going as well as can be expected with a curious 10 month old. She did beautifully in the procedure and every time they would say "children are usually fussy after this" or "they don't usually like it when we do this" she would start to smile and laugh...I can see the face of God in this child daily. Joe and I are convinced that she's already sat in the lap of our Lord while she was in the NICU and looked into His face...I guess that explains how she is always in a good mood.
We go in tomorrow to take out the probe and will probably get a report by the end of the week. We have also talked about seeing a pulmonologist, a lung doctor, to discuss the fluids that she does get in her lungs. We are going to exhaust every option and specialist before we decide to do the surgery. If you ask why we didn't think about this before, it's because we felt that the feeding tube was an immediate need, looking back we are thankful of the slower and more deliberate process...it's funny how I was so frustrated on Friday and now I'm glad that we didn't rush into anything.
Thank you for your continued prayers.
7 comments:
I'm glad y'all have had the time to go through this slowly. Thanks for the update. Give happy girl a squeeze from me. Praying for you guys all day!
That's great news! Thanks for the update, we love reading about Ella!
AMEN! God is, indeed, good!
What wonderful news! And slow and deliberate is almost always good. I find when I make decisions based on a "frantic need", that the need in the long run isn't so frantic and that wise decisions aren't best made in situations like that. So glad to hear that things are working out! And I agree...I see the face of God in your baby as well. She really is the epitome of JOY!
We are so glad to hear the good news! She is making a cute fashion statement with her feeding tube! :)
The hairy arm does nothing for the outfit! Fashion 101. God is teaching you that slow = patience. I know you hate the P word, but it's one of His words. Give my angel a big sloppy kiss - she'll know it's from Mimi!
That's good to hear love! I think about you every day and miss you so much! Give your gorgeous little girl some sugar for me!!!
~W
Post a Comment