The Mitchells: Upcoming Prayer Days

Sunday, April 29, 2007

Upcoming Prayer Days

Monday April 30th: Poages doing Sonogram for Avery
Thursday May 3rd: 9am we meet with vision assistance to see if Ella needs their therapy, 2pm we meet with the dietician again because Ella might be allergic to the toddler formula...and their are not a lot of milk-free options for tube babies.
Wednesday May 9th: Poage MRI for Avery
May 17th: 8:30am Ella's 1 year Appointment and 3pm Eye Check-up.
May 21st: Follow-Up Hearing Test

We are still doing PT every Tuesday at 9am, moved one of our OT appointments to Wednesday at noon. We are waiting to hear from Our Children's House at Baylor on when we will be scheduled there for OT (2X a week) and ST (speech, 2X a week)...plus they are going to start giving Ella the VitalStim treatments on her throat to help her swallowing. Looks like we will be at therapy 4-5 days a week!!!

1 comment:

Collin and Stephanie Poage said...: Thank you for adding us to your prayer list... You are such a thoughtful friend and I love you very much.; 10:00 PM

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Ella's Story

Elizabeth "Ella" Hope Mitchell was born on May 10, 2006 at 3:45pm...by 5am the following morning the whole world turned upside down. The doctors came in to inform us that while Ella had been resting in the Newborn Nursery, she began to have irregular breathing and seizures. It was touch and go for the next 3 days. We were told several times that she probably would not make it alive through the ordeal. She had contracted Group Beta Strep which had resulted in meningitis. Due to the seizures and the infection we had no idea what the long-term effects would be. After Ella spent a long and trying month in the NICU we came home to see where the effects of her illness had left us all.

A few months later, almost a year, we had an official long-term diagnosis...Ella has Cerebral Palsy. She is a happy and loving child. She struggles with physical delays, cognitive delays and all sorts of things that have come and go.

2-eye surgeries to correct lazy eye
3-EEG's to check for siezures
5-MRI/MRV/MRA to check actual brain damage
3-CT scans for brain stuff
1-G-button/feeding tube surgically put in (and then Ella removed herself)
10 (approx)-Swallow Studies
1-Scoliosis Study
2-Kidney Reflux tests
2-Upper GI tests
1-24 hr reflux test
8-hearing tests
countless UTI tests
seemingly a million developmental tests
a hand splint
bath chair
adaptive stroller/wheelchair
stander
gait trainer
AFO's

ha, not to mention all of the therapist...currently: OT 2X/week, PT 3X/week (2 land, 1 horse), ST 3X/week (2 oral motor, 1 speech), develomental 1X/week, vision 2x/month, and we are about to start ACCDAT camp.

As of 4/8/2009.