The Mitchells: Big Girl Chair

Thursday, June 21, 2007

Big Girl Chair

I thought I'd let you all know that we ordered Ella a positioning chair today. It's called a Bingo XPS...fancy name for a fancy stroller. Here's the link if you want to see http://www.kidsupco.com/bingo.html. Thanks to the wonderful world of insurance it should take about 3 months to arrive, but we'll let you know when it's here and how she likes it!!

4 comments:

The Farells said...: This comment has been removed by the author.; 9:00 PM
The Farells said...: Wow Ella! Your special chair looks awesome! Hope you like it when it arrives. We love you little girl!; 9:02 PM
* ~ *Jessica* ~ * said...: That chair look so neat :) Andrea- you will have to post pics of Ella in it when you finally get it! It has lots of *fun* options! How exciting! HUGS; 9:46 PM
Sean and Heather said...: First let me say CONGRATS on being pregnant. Sean and I will be praying for you, Joe and Ella. The chair for Ella looks really cool. Hopefully it will help her as well as you and Joe.

Heather; 9:28 PM

Ella's Story

Elizabeth "Ella" Hope Mitchell was born on May 10, 2006 at 3:45pm...by 5am the following morning the whole world turned upside down. The doctors came in to inform us that while Ella had been resting in the Newborn Nursery, she began to have irregular breathing and seizures. It was touch and go for the next 3 days. We were told several times that she probably would not make it alive through the ordeal. She had contracted Group Beta Strep which had resulted in meningitis. Due to the seizures and the infection we had no idea what the long-term effects would be. After Ella spent a long and trying month in the NICU we came home to see where the effects of her illness had left us all.

A few months later, almost a year, we had an official long-term diagnosis...Ella has Cerebral Palsy. She is a happy and loving child. She struggles with physical delays, cognitive delays and all sorts of things that have come and go.

2-eye surgeries to correct lazy eye
3-EEG's to check for siezures
5-MRI/MRV/MRA to check actual brain damage
3-CT scans for brain stuff
1-G-button/feeding tube surgically put in (and then Ella removed herself)
10 (approx)-Swallow Studies
1-Scoliosis Study
2-Kidney Reflux tests
2-Upper GI tests
1-24 hr reflux test
8-hearing tests
countless UTI tests
seemingly a million developmental tests
a hand splint
bath chair
adaptive stroller/wheelchair
stander
gait trainer
AFO's

ha, not to mention all of the therapist...currently: OT 2X/week, PT 3X/week (2 land, 1 horse), ST 3X/week (2 oral motor, 1 speech), develomental 1X/week, vision 2x/month, and we are about to start ACCDAT camp.

As of 4/8/2009.