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Here are the 4 months stats for the kiddos.
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So...we head to the hospital. I'm with Ella and feeling pretty..."seizure as usual" until I realize that she's breathing really off and isn't acting her normal "post-seizure" self. Within minutes she's vomiting...has NEVER happened with a seizure before this time. It was so strong and forceful...and then the room erupted. They weren't sure she was protecting her airways so they called in a team of doctors and support personnel to possibly intubate her...I was overwhelmed at the number of people who were on my small child. One guy looking down her throat, people on either arm starting lines, people getting supplies ready, and a chest x-ray machine was wheeled in...and Joe wasn't there yet, I literally thought I was going to pass out or break down crying. They decided not to tube her because they found just enough gag reflex to believe that she wouldn't aspirate. In walks Joe, and boy did I need him. They put oxygen on her, and waited for her breathing to regulate and for all of the labs to come back. We did a urine sample (poor child has been cathed so many times!) and we waited...and waited.
More of God's love for us:
4. A very dear and wonderful friend of ours, Catherine Couch, went to our house to stay with Jonathan. This was so special because he's still at the stage where he needs to each at least once during the night and then again early morning so it was amazing that we had someone take care of that so that my Mother-in-law didn't have to.
We waited and watched as the one o'clock hour came and went...twice (ah, daylight savings). By about 2am (5 hours after the seizure started) we got word that we would be moving to a Pediatric room and by 3am we were settled in and ready for a couple hours of sleep. Sleep. Our room had two beds, which was actually perfect. Joe slept on one bed and I slept with Ella. Ella in a hospital bed is dangerous. She can move around and get around, but has NO concept of falling, getting tangled in cords, or hurting herself...so someone had to be with her at all times, no exceptions. Sleeping in a hospital bed is never comfy, add in a 4-year-old, wires and IV lines, beeping monitors and pumps, and someone coming in every 4 hours to check vitals...I got about 3 hours of sleep that night. Sunday was long. We woke up and realized we didn't know any more than we did a few hours before. I headed home for a couple of hours to hug the boys and check on my mother-in-law. I got a chance to watch our 9:15am service at church with Josh Hamilton as the guest and loved that I got to catch it.
God loves me, Part 3:
5. As I was at home to take care of some things I got online and realized my best friend, Stephanie, who lives in Oxford, England as of 2 months ago, was online. WE GOT TO SKYPE! I got to tell her about Ella's night "in person" and we got to talk. She and her girls prayed with me (and Will) and we got to catch up. I saw today that it was almost 45 minutes long but it seemed to go by so quickly. There were tears shed as we hung up, but God knew I needed her that day and I was so blessed by Him.
So, I went back up to the hospital. Joe left to come home and thankfully Kristie (who used to be here full-time) came over for the whole afternoon and took care of the boys so that Joe could catch a nap and just catch up. I had some wonderful visitors of Caroline Moore and Marian Ashwill...it's nice when people can come up and laugh and pray and love on your child. Caroline even laid in bed with Ella for a while so that I could just get up and stretch...more blessings. My cousin, Katy, came over to our house after Kristie left so that Joe could do bedtime routine and then come up and hang out with Ella and me for a little while. All of this time we are just waiting for her to just be a little more "with it" and start to eat and drink...she didn't drink anything until after 6pm last night...too late to try and get discharged.
Last night Ella and snuggled up again in our hospital bed and caught a few more hours of sleep...like 5 or 6! Today our beloved pediatrician came in and broke us out of jail (we *heart* Dr. Nale). All of our labs came back clear. No UTI, no ear infection...nothing they could find to explain anything.
We're home and recovering. I'm going to bed and getting to sleep the entire night without disruption (thank you sweet Katy for coming back over and taking care of Jonathan tonight) and hopefully our whole family is on the road to recovery.
This was so much harder for so many reasons. I really hate being away from Will and Jonathan for that long. JT is only 3 months old and I know he doesn't understand, but I feel like I'm abandoning him. Will knows I'm gone and misses me and that makes it hard. Ella only wanted me so I needed to take care of my sick baby...and if I'm honest, this was one of her hardest seizures on me. I very rarely let my brain go to the place that says that we could lose her. That all of her medical complications are just scary individually, but combined she is so fragile and it could go from our "normal" to bad very quickly. Joe used to be so afraid that the seizures would cause a heart attack or at least heart damage...I've never felt so afraid as I did during this attack.
I know God is teaching me...I just want to remember to rely totally on Him and trust Him to take care of my child...for we are all HIS children and He loves Ella more than I ever could.
That's all I can remember, but I'll have to see if I missed anything from Joe.