The Mitchells: Too Late to Write

Tuesday, February 03, 2009

Too Late to Write

Okay, so it's 10:30pm. That may not be late at your house, but it's VERY late at ours. The kids are asleep, Joe is in bed and sick (I can hear him coughing, poor guy) and all of my girlfriends have left the house after a great bible study tonight. There is SO much I want to write about, but I really should finish cleaning up the house (and I'm not at 10,000 steps yet). So, here are a list of things I want to come back and write about:

what the heck is the 10,000 step comment about
how much I love the Neff's and grieve for them right now
loving that Alyssa is in town and that I got to meet Liam and she got to meet Ella and Will
who I am in Christ
who I have become (because of the above statement) versus who I still see myself as being
oh, Will's birthday party...should probably post that
life at our house since I last updated

So...send me things that you want me to write about or post on and I'll get to it...maybe not tomorrow, but it will give me something to use as a goal. Oh, and sorry if you aren't on Facebook...that's where all my updating happens lately.

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Ella's Story

Elizabeth "Ella" Hope Mitchell was born on May 10, 2006 at 3:45pm...by 5am the following morning the whole world turned upside down. The doctors came in to inform us that while Ella had been resting in the Newborn Nursery, she began to have irregular breathing and seizures. It was touch and go for the next 3 days. We were told several times that she probably would not make it alive through the ordeal. She had contracted Group Beta Strep which had resulted in meningitis. Due to the seizures and the infection we had no idea what the long-term effects would be. After Ella spent a long and trying month in the NICU we came home to see where the effects of her illness had left us all.

A few months later, almost a year, we had an official long-term diagnosis...Ella has Cerebral Palsy. She is a happy and loving child. She struggles with physical delays, cognitive delays and all sorts of things that have come and go.

2-eye surgeries to correct lazy eye
3-EEG's to check for siezures
5-MRI/MRV/MRA to check actual brain damage
3-CT scans for brain stuff
1-G-button/feeding tube surgically put in (and then Ella removed herself)
10 (approx)-Swallow Studies
1-Scoliosis Study
2-Kidney Reflux tests
2-Upper GI tests
1-24 hr reflux test
8-hearing tests
countless UTI tests
seemingly a million developmental tests
a hand splint
bath chair
adaptive stroller/wheelchair
stander
gait trainer
AFO's

ha, not to mention all of the therapist...currently: OT 2X/week, PT 3X/week (2 land, 1 horse), ST 3X/week (2 oral motor, 1 speech), develomental 1X/week, vision 2x/month, and we are about to start ACCDAT camp.

As of 4/8/2009.